Today, I came across the best description I’ve seen of the difficulty of storing healthcare information and also making that information shareable with another EMR in a way that is meaningful.

Longitudinal patient information is arguably one of the most temporally and spatially complex information sets known. Certainly GIS and others are complex as well but the science of medicine and therefore healthcare is constantly changing creating a moving context. To understand how to treat a patient the healthcare provider needs to be able to understand what has worked as well as what hasn’t worked in the context of what was known about the patient and the treatments available at any point in time. This creates an environment of very complex data relationships. If any one of those relationships are broken then the semantic context of the data is lost and now there is a loss of information. Data items need to be bundled and stored as a complete unit of understanding for them to constitute information. Once broken apart into separate data items they are much like Humpty Dumpty.

Certainly the above description describes the challenge of storing and sharing both the healthcare information and the context of that healthcare information. I still can’t help but think that we need to simplify our goals for EMR data sharing into small achievable goals.

The above description also kind of reminds me of my previous post about the “Body of Medical Knowledge Too Complex for the Human Mind.” The description above reinforces this challenge as well.

I just came across a few interesting tweets where Howard Luks, Web 2.0 and HC 2.0 savvy Orthopedist fascinated by Social Media and influence on healthcare delivery, posted his 100 patient “poll” on PHR. His first question was how many people were interested in PHR. The second one was how many patients would want their healthcare data online (cloud). Check out the responses.

66/100 not knowing what a PHR is seems high. I would have guessed more like 95/100 wouldn’t know what a PHR was. The split for those interested in their HC information being online seems pretty representative. Over half of the people don’t care or don’t know. So far no PHR vendor has really given us a reason to care.