Patients Want to Share Their Medical Data

Posted on March 29, 2013 I Written By

John Lynn is the Founder of the blog network which currently consists of 10 blogs containing over 8000 articles with John having written over 4000 of the articles himself. These EMR and Healthcare IT related articles have been viewed over 16 million times. John also manages Healthcare IT Central and Healthcare IT Today, the leading career Health IT job board and blog. John is co-founder of and John is highly involved in social media, and in addition to his blogs can also be found on Twitter: @techguy and @ehrandhit and LinkedIn.

During the recent Dell Healthcare Think Tank which I took part in, I had an idea that I think is incredibly powerful and not talked about nearly enough. In fact, I think its reasonable to say that if we want to get healthcare costs down, then we have to learn how to do this well.

The idea revolves around how we talk about privacy of health information with patients. Far too often, patients just hear news reports that talk about all of the reasons they should fear their health information getting out in the open. Instead, they almost never hear stories about how having their health information shared with the right people will actually improve their health.

The simple fact is that if you lead with all the bad things that could possibly happen with health information in the wrong hands, then of course no patient is going to want their patient information shared. However, if they know how sharing their health information with the right people will improve their care, then patients are more than willing to share away.

Basically, what I’m saying is that sharing healthcare data has been marketed wrong. The privacy advocates are well organized and have many people fearful for what will happen with their health information. I don’t have any problem with privacy advocates, because they help us to pause to take a reasonable look at the importance of privacy. However, the need for proper privacy controls doesn’t mean that we don’t share healthcare information at all.

The beauty of all of this is that the majority of people think this is how it happens in healthcare today. They don’t realize that quite often their healthcare information isn’t traveling with them to specialists and hospitals. In fact, when patients discover that it doesn’t they’re usually quite surprised and don’t understand why it doesn’t.

I hope we can work on the data sharing message. We can share your data with the people who need it so we can improve your care. If patients hear this message, healthcare data sharing will not be feared but embraced.