Welcome to EMR and HIPAA

Recently I’ve been reading a fair amount about the movement that many are calling Health 2.0. I think the most simple description of Health 2.0 is applying many of the Web 2.0 concepts to health care. My question is whether EMR fits into Health 2.0. My personal feeling is that most of them don’t. Most Web 2.0 projects are consumer facing projects that allow people to interact, collaborate and participate in the process. EMR software is more about facilitating a doctor’s charting.

Certainly you could make a good case that a patient portal or EHR is more Health 2.0. In fact, that really seems to cut to the heart of Health 2.0. Creating a powerful interface between doctors and patients so that patients are a part of the process. However, I think that most EMR in their current state don’t benefit from this type of interaction.

Of course, this begs the question of whether an EMR should have this type of interaction. My short answer is that it should, but until the payment systems catch up with the technology that creates these interactions we won’t see broad Health 2.0 application to EMR software.

About a month ago I got an email that I just got around to reading today. Essentially it was someone announcing a new social network for prescription drug consumers. Here’s a part of the release that I was sent about the prescription drug social network:

I’d like to invite you to try out the eDrugSearch.com Community — a brand new social network for prescription drug consumers. To join, just go to www.edrugsearch.com/register and sign up; it takes only a couple of minutes.

Why a social network for drug consumers? At eDrugSearch.com, we believe that online communities will forever change the face of healthcare — by giving consumers the information and resources they need to ask better questions of caregivers, to support one another, and to save money on treatments and medications.

Prescription drug consumers, in particular, have shown a strong interest in social networks on general health sites, indicating an unmet demand for a niche community. U.S. drug consumers relish the opportunity to share their experiences — their discoveries, their frustrations, their solutions. These Americans are turning to each other rather than relying solely on pharmaceutical company advertising or rushed doctor’s appointments.

We want the eDrugSearch.com Community to be a place you can come for help, reassurance and advice.

Of course, this really begs the question of if we need a social network around prescription drugs. Of course, my gut reaction is that prescription drugs sounds like much to small of a category for a social network. I’m certain that a lot of niche social networks are going to do very well (in fact, I’m working on a sports one myself), but can prescription drug consumers support a social network.

Seriously, when I’m taking prescription drugs I want to get off them as soon as possible. Are people going to just visit the site for entertainment. Certainly there are people who have chronic illnesses that take drugs for a long time, but won’t they stop visiting the site after taking the same drug for so many years? I guess maybe they’re hoping for advancements or alternatives to that drug, but that still feels like a stretch.

The other part of me thinks that something like this might work. I’ve always felt like one of the advantages of my job is that I had access to not only a bunch of doctors, nurse practioners and PAs, but I also support a pharmacy. In the past three years, there have been a number of times where I make the rounds of doctors, APNs and the pharmacist to learn about the drugs that were prescribed to myself or my family. To me this illustrates the need for information that people have when they are prescribed a drug.

Of course, the biggest challenge of this all is can you trust the information that this prescription drug social network provides? How do you know when someone is qualified in the area or not? Not to mention I could see the drug companies really abusing this site with false information. I think we all have been to hotel sites where the ratings just sounded too good to be true. Sounds pretty easy for the drug companies to do the same thing.

Now, if they had a way to certify providers (MD, DO, APN, PA), then you could give some credibility to what was being said. In fact, a social network for these providers to discuss the various drugs is something that could be very strong and useful. That sounds pretty Health 2.0 to me.

Think about how wonderful the ability to send a discharge summary by email to a patient straight from your EMR. I think it’s pretty easy to see the tremendous benefits of this type of communication. Send the patient information to one place they probably visit every day and where they can read and process the information away from the hustle and bustle of the clinic. Certainly many doctors have been doing this with little pamphlets or handout sheets with clinical information. Unfortunately, too many of these sheets never get read. Certainly that same thing could happen with an email, but at least the next generation of patients are going to want this information in their email box.

Of course, the problem with sending this information in an email is that email is not secure. Email encryption hasn’t taken hold fast enough to make it encrypted. Is a user’s email box really a secure location where they want their health information? I personally don’t have a problem with it, but I would expect that many people wouldn’t want their health information in their email any more than their regular mailbox. Either way, without the encryption it wouldn’t be difficult for someone to sniff out what’s being sent in an Email containing for example a patient’s discharge. It would be going across the internet in basically plain text.

This situation actually happened in Austrailia a little while back in an article I read called “Unsecured email sparks dispute.” I know I wouldn’t be happy if a clinic just decided to send these unsecured emails. Not so much because I was personally worried about my information being lost. I personally have nothing to hide (yet anyway). However, I would feel uncomfortable patronizing an organization that would deal so flippantly with my information.

I’m sure that someone will chime in that this is the whole purpose of a Patient Portal or EHR interface that allows people a secure method to receive and send protected health information. This is all well and good, but from what I’ve seen this usually requires the doctor’s EMR company to support this type of interaction. Plus, even more serious of an issue is that you’re giving your patients one more login and password that they’ll need to remember. Certainly not a deal breaker, but one more inconvenience for our users and the staff that have to support our users when they forget their password. Unfortunately, I think that this is the future of secured messaging, but I can always hope that there’s something better that we’re just missing.

We should also realize that this isn’t going to get any easier. In fact, I think we can reasonably say that this is going to get harder and harder. Don’t be surprised if soon some patient would like their health information somehow incorporated into some site like Facebook. It’s really only a matter of time until some developer creates a health interface into Facebook.

It might not make sense to most people, but the next generation of patients are going to grow up living and breathing their online life in some sort of social network (Facebook is just one example of these). They are very comfortable with transparency and will be interested in being able to track and compare health information with other people. Not to mention interact in a social network with other people who have similar conditions. It seems like this isn’t a question of if, but when this type of interaction will happen.

Even if you think that health information on a social network like Facebook is far fetched, we are already seeing health information propagating to the web in Microsoft’s HealthVault and Google Health. Is this going to be ok? Will it become as synonymous as online banking has become to the banking world? It’s not that far of a stretch to think that Google Health could easily be tied into Google’s OpenSocial platform which would allow a patient’s health information to do all sorts of cool things.

The convergence of Health Care and IT is going to be really interesting. It’s taken health care a while to get going with IT, but I think almost everyone agrees that IT could do amazing things to better the health care a person receives.

Today I saw an article on TechCrunch that talked about how Google Blogscoped found a Google Health login page (UPDATE: The Google Health Beta Landing Page has been taken down) for the hopefully soon to be released Google Health. Of course, there isn’t really anything all that special about the login page. It looks just like almost all the other Google login pages. However, the Google Health page did include the following information:

With Google Health, you can:

* Build online health profiles that belong to you
* Download medical records from doctors and pharmacies
* Get personalized health guidance and relevant news
* Find qualified doctors and connect to time-saving services
* Share selected information with family or caregivers

Too bad none of the other links work, but it does give some interesting information about what Google Health will be like. The part that is most concerning to me is downloading medical records from doctors and pharmacies. How are they going to do that? The answer is that they aren’t really going to do it. There are going to be a handful of the thousands and thousands of doctors and pharmacies that will be able to work with Google Health.

I hope that Google Health does the right thing and integrates with something like CCR since it is already beginning to be established in many Electronic Medical Record software programs. That would be a huge boon to CCR, but it would also open up an entire set of doctors that could support upload to Google Health. This could definitely be a nice differentiator from Microsoft Health Vault which can’t do this either (unless it’s been added since I looked).

If Google Health decides to create their own standard for a clinic to be able to upload to Google Health they are crazy. Doctors have almost no motivation to support Google’s standard for uploading medical records. I’m not sure many EMR companies will support it either. I can see a few of them do it as a PR move, but I’d be very surprised if many of them bit on this. Doctors don’t buy EMR software because their patients can get their record out easier. It just doesn’t make business sense for EMRs or doctors to really do any sort of uploading like this to Google Health.

Of course the good thing for this all is that having another big player like Google interested in helping the healthcare system with some Health 2.0 solutions is great by me.

You can see my previous coverage of Google Health and also the Google Health Co-op.

Update: Here’s a screen shot of what Google Health could look like.

Update 2: What CEO of Google Eric Schmidt said about Google Health at HIMSS08.